Mar 14, 2023EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Feb 24, 20233 Women with EDS who are shaping the futureLara speaks with Reader's Digest's Amy Fogarty alongside Jeannie Di Bon and Courtney Gensemer about their lives with EDS and how they are...
Feb 14, 2023Chromodiversity Podcast: Dazzling Zebras Lara joins Chromodiversity's Elliot Polack to discuss how improved classifications and better awareness of EDS and HSD is resulting in...