EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in Between
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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- Sep 20
EDS & Me VLOG Episode Thirty Eight: Summer
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
- Jul 3
EDS & Me VLOG Episode Thirty Seven: Hopping around Europe
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- May 31
EDS & Me VLOG Episode Thirty Six: Springtime in New York
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Apr 18
EDS & Me VLOG Episode Thirty Five: Adapting to life as a Mama
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Mar 14
EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Jan 6
EDS & Me VLOG Episode Thirty Three: Jingle All The Way
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Dec 7, 2022
EDS & Me VLOG - Episode Thirty Two: Seasons Changing
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Oct 27, 2022
EDS & Me VLOG - Episode Thirty One: A Very Busy Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Aug 19, 2022
EDS & Me VLOG - Episode Thirty: The Circle of Life...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Jun 17, 2022
EDS & Me VLOG - Episode Twenty Nine: On the road again...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Apr 19, 2022
EDS & Me VLOG - Episode Twenty Eight: Highs and Lows
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Mar 11, 2022
EDS & Me VLOG - Episode Twenty Seven: First VLOG of 2022
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Jan 20, 2022
EDS & Me VLOG - Episode Twenty Six: Winter
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Nov 17, 2021
EDS & Me VLOG - Episode Twenty Five: Fall
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Oct 5, 2021
EDS & Me VLOG - Episode Twenty Four: Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Aug 11, 2021
EDS & Me VLOG - Episode Twenty Three: Spring
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Jul 8, 2021
EDS & Me VLOG - Episode Twenty Two: New Year, New Beginnings Part One
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Jan 6, 2021
EDS & Me VLOG - Episode Twenty One: Lockdown, Loss and Love
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
- Sep 8, 2020
EDS & Me VLOG - Episode Twenty: We bought a house!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom
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