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Feb 18

Made Visible Podcast

Episode 72: Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Harper Spero chats with Lara Bloom about why she has ...

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Mar 14, 2019

MetaECHO Talk 2019: EDS ECHO - Together We Will Dazzle

Lara Bloom gives talk on EDS ECHO - the first ECHO for a Rare Disease. MetaECHO 2019 brought together health policy experts, government officials, academic l...

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Jan 30, 2018

'Issues With My Tissues' Documentary

In 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life due to Ehlers-Danlos syndrome, Lara Bloom decided t...

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"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom