News & Media

Cambodia to Vietnam Cycle Challenge

Lara cycled from Cambodia to Vietnam in February 2020. Despite suffering with various problems with her EDS, Lara was given medical...

I am Number 17: Rare Disease Campaign

"Who am I? I am the one in 17 people in the UK affected by a rare disease at some point in their life. I could be on my way to yet...

Memoir

Lara is currently working on her memoir. Please subscribe to her social media channels and keep an eye on this website for the latest...

'Issues With My Tissues' Documentary

In 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life due to Ehlers-Danlos syndrome,...

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom