Feb 1, 2022Lara Bloom joins the Stakeholder Network for Rare DiseasesFollowing on from Lara's contributions as a member of the Rare 2030 Panel of Experts, she has now accepted an invitation to join the...
May 17, 2020President and CEO Lara Bloom Appointed to Professorship at Penn State College of MedicineCommemorating ten years in the field of patient advocacy for the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD),...
May 25, 2019The Ehlers-Danlos Society Awarded $50,000 Donation From Carnival Cruise Line(MENAFN - Newswire.com LLC) BALTIMORE, May 24, 2019(Newswire.com) The Ehlers-Danlos Society is honored to have been in attendance at the...
Jun 12, 2018Charity’s international director welcomes launch of EDS support groupLara Bloom has walked the London Marathon, carried the torch for the London 2012 Paralympic Games, and is constantly on the move around...
