Lara Bloom joins the Stakeholder Network for Rare Diseases

Press



- May 17, 2020
President and CEO Lara Bloom Appointed to Professorship at Penn State College of Medicine


- May 25, 2019
The Ehlers-Danlos Society Awarded $50,000 Donation From Carnival Cruise Line


- Jun 12, 2018
Charity’s international director welcomes launch of EDS support group


- May 1, 2018
Perfectly Imperfect Inspiring Woman Q&A

- May 2, 2017
Sky News Interview May 2017

- Nov 11, 2016
Ehlers-Danlos Syndrome: More Than Just Stretchy Skin and Bendy Joints


- Oct 13, 2016
Lara's mission against pain


- Oct 13, 2016
Lara: living with Ehlers-Danlos Syndrome


- May 27, 2012
Bushey resident Lara Bloom sees torch she will carry for London 2012 Games Paralympic Torch Relay


- Apr 13, 2011
Woman from Bushey with Ehlers-Danlos Syndrome to take on London Marathon
"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom