News & Media

EDS & Me VLOG - Episode Twenty Eight: Highs and Lows

Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...

Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...

The Health Design Podcast brought to you by the Journal of Health Design speaks to Lara Bloom about her experience living with an...

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom