News & Media

EDS & Me VLOG - Episode Twenty One: New Year, New Beginnings Part One

Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...

Lara shares her personal experiences living with an invisible illness with MindBodyGreen. Go to article.

Episode 15: Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes. Lara speaks with Jessica...

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom