News & Media

Pain-Free Fitness: The Podcast

Your Pain is NOT Invisible with Professor Lara Bloom Lara speaks with Mariah Heller to discuss Ehlers Danlos, Chronic Pain, and...

Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...

Lara takes part in RDI's series of conversations with representatives of the global rare disease patient movement. Watch. Length: 8mins...

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom