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Listen as Lara discusses her journey with Ehlers-Danlos Syndrome (EDS), her advocacy work, and the importance of community support. The conversation covers the challenges of living with a chronic illness, the significance of accurate diagnosis, and the role of personal experience in advocacy. Lara shares insights on the law of attraction, the impact of misinformation in health, and the importance of fundraising for research. The episode concludes with a discussion on the poli

Lara began at a powerful conference exploring the True Faces of Rare, highlighting the real, lived experiences behind the statistics. From there, she made her way to BBC Broadcasting House to record an interview for the #IamNumber17 campaign. It was an incredible opportunity to share her journey with Ehlers-Danlos syndrome - shining a light on the realities of living with a rare condition, the challenges of getting a diagnosis, and the importance of being seen and heard. We'

What does it take to live with Ehlers-Danlos Syndrome and still lead a global movement for change? 🌍   In this episode, Lara Bloom shares her inspiring journey from navigating her own diagnosis to becoming one of the most influential advocates for rare, chronic, and invisible conditions worldwide. Lara opens up about balancing health, motherhood, and international advocacy while pushing for research, awareness, and medical collaboration. She also shares practical advice on m