LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

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Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

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Public Speaker & Campaigner

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  • YouTube
  • Instagram
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© 2019 Lara Bloom

News & Media

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

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- Lara Bloom