News & Media

Findacure: The Virtual Rare Disease Showcase - The Clinical Trial Landscape Post COVID-19

Lara Bloom presents on The HEDGE Study, Enrolling For A Research Stuy In A Virtual World Lara Bloom presents at 1.10.33 / 1.27.55

Findacure: The Virtual Rare Disease Showcase - The Impact of COVID-19 on Rare Diseases

Lara Bloom presents on Adapting to Life in a Global Pandemic, COVID-19 and Rare & Chronic Health Lara Bloom presents at 23.00 / 1.50.59

MetaECHO Talk 2019: EDS ECHO - Together We Will Dazzle

Lara Bloom gives talk on EDS ECHO - the first ECHO for a Rare Disease. MetaECHO 2019 brought together health policy experts, government...

EDS 2017 Criteria Press Conference

Lara Bloom and Dr. Clair Francomano held a press conference at GBMC to discuss the new criteria and management and care guidelines being...

Strength Begins With Hope

This talk at the international symposium in NYC gave me the opportunity to share the story of why I do what I do. Subscribe

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom