Issues With My Tissues
In 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life due to Ehlers-Danlos syndrome, Lara Bloom decided to try and become the first person with EDS to walk the London Marathon.
The documentary follows Lara’s journey and features interviews with medical professionals, families with EDS and individuals who have suffered from misdiagnosis.
My EDS Challenge
Cambodia to Vietnam Cycle Ride
Lara is going to attempt to cycle from Cambodia to Vietnam in February 2020.
Despite suffering with various problems with her EDS, she has been given medical clearance to begin training and plans to reach the finishing line for all of the Ehlers-Danlos community, just like she did at the London Marathon in 2011.
This challenge is in aid of raising awareness and funds for
The Ehlers-Danlos Society.