News & Media

Sep 3

Rare Diseases International: Meet the Patient Advocates

Lara takes part in RDI's series of conversations with representatives of the global rare disease patient movement. Watch. Length: 8mins...

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Jun 21

I Felt Like An Outcast Most Of My Life—Then My Diagnosis Gave Me A Community

Lara shares her personal experiences living with an invisible illness with MindBodyGreen. Go to article.

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Jun 4

The Spoonie Struggle Podcast

Episode 15: Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes. Lara speaks with Jessica...

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Oct 26, 2020

The Chronically Courageous with Bonni Howard - From Challenge Comes Opportunity

Episode 23: Lara talks with Bonni Howard about her personal experience with COVID-19, recent challenges separating her personal &...

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Sep 2, 2020

How a Patient-Led Effort Can Change a Research Landscape

Lara recently spoke with RareX, a non-profit created by leaders in the fields of patient advocacy, medical research, biopharma, and...

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Jul 15, 2020

Prof. Lara Bloom Virtual Professorship Ceremony 2020

Watch as Lara Bloom is presented with her Professorship and becomes an Academic Affiliate Professor of Practice in Patient Engagement and...

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May 30, 2020

Tea with HB Podcast: Rari-tea

Season 1, Ep. 11 No two zebras have the same stripes. How does this relate to rarity? Listen to HB's interview with Lara Bloom to find...

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May 1, 2020

Going Global - Global Genes Webinar

It was an absolute pleasure to share my insights on a non profit 'Going Global' through my experience at The Ehlers-Danlos Society with...

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Feb 18, 2020

Two Disabled Dudes Podcast

Episode 97: A Life of Ehlers-Danlos Advocacy with Lara Bloom. Sean and Kyle (Two Disabled Dudes) chat with Lara Bloom about what it means...

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Feb 18, 2020

Made Visible Podcast

Episode 72: Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Harper Spero chats with Lara...

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Jan 27, 2020

What's Next For The Ehlers-Danlos Society?

Lara recently interviewed with Saltstick Vitassium discussing her experience living with EDS, as well as what she and The Ehlers-Danlos...

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Jul 18, 2019

Hypermobility Happy Hour Podcast

Episode 09: Interview with Lara Bloom, International Director of the Ehlers-Danlos Society Dr. Bluestein chats with Lara Bloom about her...

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Jun 19, 2019

Uninvisible with Lauren Freedman Podcast

Episode 027: Lara Bloom, International Executive Director of the Ehlers - Danlos Society Lara Bloom is the international Executive...

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Feb 28, 2019

pharma.be meets Lara Bloom

Marking Rare Disease Day in Brussels with pharma.be

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Sep 13, 2018

The Moment with Maxine Mawhinney

Lara was recently invited to take part in an interview with Maxine Mawhinney. Unfortunately this video is no longer available to view.

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May 1, 2018

Perfectly Imperfect Inspiring Woman Q&A

Trendable Woman of the Month. Meet Lara Bloom: Lara Bloom is the international Executive Director of the Ehlers-Danlos Society where...

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Jan 31, 2018

EUPATI Legacy Film

I am very proud to be a EUPATI Fellow. Please watch to see what EUPATI have been up to, the toolkit and the course itself.

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May 2, 2017

Sky News Interview May 2017

Lara Bloom and Jodieanne Winter were interviewed live on Sky News during EDS awareness month to share the tragic story of Jodiesanne's 13...

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"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom

News & Media

Rare Diseases International: Meet the Patient Advocates

I Felt Like An Outcast Most Of My Life—Then My Diagnosis Gave Me A Community

The Spoonie Struggle Podcast

The Chronically Courageous with Bonni Howard - From Challenge Comes Opportunity

How a Patient-Led Effort Can Change a Research Landscape

Prof. Lara Bloom Virtual Professorship Ceremony 2020

Tea with HB Podcast: Rari-tea

Going Global - Global Genes Webinar

Two Disabled Dudes Podcast

Made Visible Podcast

What's Next For The Ehlers-Danlos Society?

Hypermobility Happy Hour Podcast

Uninvisible with Lauren Freedman Podcast

pharma.be meets Lara Bloom

The Moment with Maxine Mawhinney

Perfectly Imperfect Inspiring Woman Q&A

EUPATI Legacy Film

Sky News Interview May 2017

LARA BLOOM

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