News & Media

Feb 18

Two Disabled Dudes Podcast

Episode 97: A Life of Ehlers-Danlos Advocacy with Lara Bloom. Sean and Kyle (Two Disabled Dudes) chat with Lara Bloom about what it means to build and sustai...

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Feb 18

Made Visible Podcast

Episode 72: Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Harper Spero chats with Lara Bloom about why she has ...

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Jan 27

What's Next For The Ehlers-Danlos Society?

Lara recently interviewed with Saltstick Vitassium discussing her experience living with EDS, as well as what she and The Ehlers-Danlos Society are doing to ...

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Jul 18, 2019

Hypermobility Happy Hour Podcast

Episode 09: Interview with Lara Bloom, International Director of the Ehlers-Danlos Society Dr. Bluestein chats with Lara Bloom about her personal medical jo...

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Jun 19, 2019

Uninvisible with Lauren Freedman Podcast

Episode 027: Lara Bloom, International Executive Director of the Ehlers - Danlos Society Lara Bloom is the international Executive Director of the Ehlers-Da...

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Feb 28, 2019

pharma.be meets Lara Bloom

Marking Rare Disease Day in Brussels with pharma.be

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Sep 13, 2018

The Moment with Maxine Mawhinney

Lara was recently invited to take part in an interview with Maxine Mawhinney. Unfortunately this video is no longer available to view.

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May 1, 2018

Perfectly Imperfect Inspiring Woman Q&A

Trendable Woman of the Month. Meet Lara Bloom: Lara Bloom is the international Executive Director of the Ehlers-Danlos Society where she is responsible for...

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Jan 31, 2018

EUPATI Legacy Film

I am very proud to be a EUPATI Fellow. Please watch to see what EUPATI have been up to, the toolkit and the course itself.

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May 2, 2017

Sky News Interview May 2017

Lara Bloom and Jodieanne Winter were interviewed live on Sky News during EDS awareness month to share the tragic story of Jodiesanne's 13 year old daughter L...

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"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom

LARA BLOOM

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Quick Links

News & Media

Two Disabled Dudes Podcast

Made Visible Podcast

What's Next For The Ehlers-Danlos Society?

Hypermobility Happy Hour Podcast

Uninvisible with Lauren Freedman Podcast

pharma.be meets Lara Bloom

The Moment with Maxine Mawhinney

Perfectly Imperfect Inspiring Woman Q&A

EUPATI Legacy Film

Sky News Interview May 2017