May 17, 2020President and CEO Lara Bloom Appointed to Professorship at Penn State College of MedicineCommemorating ten years in the field of patient advocacy for the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD),...
Mar 6, 2020EDS & Me VLOG - Special Episode: Cambodia & Vietnam Cycle Challenge Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jan 30, 2018'Issues With My Tissues' DocumentaryIn 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life due to Ehlers-Danlos syndrome,...