May 30, 2020Tea with HB Podcast: Rari-tea Season 1, Ep. 11 No two zebras have the same stripes. How does this relate to rarity? Listen to HB's interview with Lara Bloom to find...
May 17, 2020President and CEO Lara Bloom Appointed to Professorship at Penn State College of MedicineCommemorating ten years in the field of patient advocacy for the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD),...
May 11, 2020EDS & Me VLOG - Episode Sixteen: Living in LockdownJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...