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S3E5: Lara Bloom on hEDS and HSD Listen to Lara on how she raises global awareness of rare, chronic and invisible diseases, specialising...
Jun 6
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Chezuba Talks: Impact Stories
Ep-215:Spotting the Zebra: Understanding Ehlers-Danlos Syndromes with Lara Bloom No two zebras have identical stripes, and a group of...
Jun 6
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The Start: An Early Retirement
Lara is interviewed by Canadian podcast, The Start, who are based in Winnipeg. The show picked up the story of Jets prospect Chaz Lucius...
Jun 6
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Patients facing Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)
For individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), the journey to diagnosis and...
May 7
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Not Just Patients Podcast - Advancing Equity, Diversity, and Inclusion in Healthcare
A strong patient advocate, Lara has a passion for pushing boundaries and fighting for progression DE&I in healthcare and LGBTQIA+ rights....
Dec 9, 2024
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10 Minutes With Rhiannon Walls: Parenting & rare diseases
Becoming a new parent is challenging at the best of times. But, what does this look like when you’re living with a rare disease? In this...
Oct 10, 2024
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From Photographer to Professor: With a few detours along the way
Lara is interviewed by Emma Sutcliffe about her story and journey. Click here to listen to episode.
Oct 10, 2024
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RARE Pride: A Queer Conversation with Lara Bloom
On June 11, 2024, Global Genes hosted a forum for stakeholders in the rare disease community to discuss their intersectionality as part...
Oct 10, 2024
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Bendy Bodies Podcast: Examining The Future of EDS Diagnosis and Care
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the...
Oct 10, 2024
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CEO & Professor Lara Bloom on her relentless pursuit for change on a global scale
From stripes to strength: How the Ehlers-Danlos Society transforms lives through advocacy, research and community support. Click here to...
Oct 10, 2024
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Supporting Individuals and Their Families with Rare Conditions: Strategies for Healthcare Professionals
Dealing with a rare condition can be a daunting experience for individuals and their families. Rare diseases, by their very nature, often...
Oct 10, 2024
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Lived experience is the why and the how that health systems need
Lara shares in this article these & other forward-looking reflections on the future of patient advocacy, professionalisation, and the...
Jun 11, 2024
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AccessiBe's Spotlight Session with Lara Bloom
Lara is interviewed by Josh Basile as part of accessiBe's spotlight sessions - this is a series dedicated to conversations with...
Jun 6, 2024
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RARE REV-inar Women in Rare science and research
To mark International Women’s Day 2024, Lara is interviewed on a special episode of the RARE Rev-inars, celebrating women in rare disease...
Apr 23, 2024
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Rare Disease Month - The Lisa Burke Show
In the lead-up to Rare Disease Day on 29th February, Lara talks about the mental health impact on the whole family and care-giving unit....
Feb 21, 2024
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Handi-Link Radio Interview
This program focuses on disability issues. Host Cam Wells explores all sides of this comparing and contrasting with able bodied life....
Jun 23, 2023
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Two Disabled Dudes Podcast - You Got This
You Got This, Mental Health featuring Lara Bloom – There are many challenges living with a disability. On top of the physical...
Apr 14, 2023
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3 Women with EDS who are shaping the future
Lara speaks with Reader's Digest's Amy Fogarty alongside Jeannie Di Bon and Courtney Gensemer about their lives with EDS and how they are...
Feb 24, 2023
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Chromodiversity Podcast: Dazzling Zebras
Lara joins Chromodiversity's Elliot Polack to discuss how improved classifications and better awareness of EDS and HSD is resulting in...
Feb 14, 2023
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VR Workforce Studio Podcast
The Resolve To Work In The Face Of Chronic Illness: Honoring Rare Disease Awareness Day Lara joins hosts Rick Sizemore and Betsy...
Feb 2, 2023
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"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
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- Lara Bloom
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