Living, Leading and Thriving with EDS: The PoTS & Co Podcast

What does it take to live with Ehlers-Danlos Syndrome and still lead a global movement for change? 🌍

In this episode, Lara Bloom shares her inspiring journey from navigating her own diagnosis to becoming one of the most influential advocates for rare, chronic, and invisible conditions worldwide.

Lara opens up about balancing health, motherhood, and international advocacy while pushing for research, awareness, and medical collaboration. She also shares practical advice on managing life with EDS, advocating for yourself in healthcare, and how to get involved with the EDS Society.

Whether you’re newly diagnosed, living with EDS or HSD, or simply looking for inspiration, Lara’s story proves that invisible illness doesn’t mean invisible voices.

Listen to episode here