Bendy Bodies Podcast: Examining The Future of EDS Diagnosis and Care
- Lara Bloom
- Oct 10, 2024
- 1 min read
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care.
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This podcast episode is an invaluable resource for anyone interested in Ehlers-Danlos syndromes and hypermobility spectrum disorders. Lara Bloom’s insights into patient advocacy, research progress, and diagnostic updates highlight the importance of informed, compassionate senior care. A must-listen for patients, caregivers, and healthcare professionals navigating the complexities of rare conditions.