News & Media

#RareShowcase23 Lightning Talk Lara Bloom - How project ECHO can help rare diseases

At the London Rare Disease Showcase, Lara shared the work of The Ehlers-Danlos Society using project ECHO to help rare disease, with a...

Dec 12, 2023

Lara Bloom presents on The HEDGE Study, Enrolling For A Research Stuy In A Virtual World Lara Bloom presents at 1.10.33 / 1.27.55

Dec 8, 2020

Lara Bloom presents on Adapting to Life in a Global Pandemic, COVID-19 and Rare & Chronic Health Lara Bloom presents at 23.00 / 1.50.59

Dec 8, 2020

Lara Bloom gives talk on EDS ECHO - the first ECHO for a Rare Disease. MetaECHO 2019 brought together health policy experts, government...

Mar 14, 2019

Lara Bloom and Dr. Clair Francomano held a press conference at GBMC to discuss the new criteria and management and care guidelines being...

Mar 2, 2017

This talk at the international symposium in NYC gave me the opportunity to share the story of why I do what I do. Subscribe

Feb 2, 2017

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom