Patients facing Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)

For individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), the journey to diagnosis and appropriate care is often long, complex, and emotionally exhausting. In this article, I explore why accessing help can be so difficult for this population, the challenges of diagnosis and misdiagnosis, and what support structures are currently available, or still desperately needed.

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