Jan 22, 2020I am Number 17: Rare Disease Campaign"Who am I? I am the one in 17 people in the UK affected by a rare disease at some point in their life. I could be on my way to yet...
Nov 11, 2019EDS & Me VLOG - Episode Ten: Falling Leaves, Keto and Halloween FunJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Oct 8, 2019EDS & Me VLOG - Episode Nine: East Coast - West CoastJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...