Lara Bloom joins the Stakeholder Network for Rare Diseases

Following on from Lara's contributions as a member of the Rare 2030 Panel of Experts, she has now accepted an invitation to join the newly formed Stakeholder Network for Rare Diseases as part of the EU Health policy. This network aims to establish a platform for multi-stakeholder dialogue on the rare diseases policy framework, discuss and integrate recommendations and best practices, and eventually outline policy strategies and actions (at EU, national and local level, as appropriate) to improve health outcomes and quality of life of people living with a rare disease.