Feb 7, 2020EDS & Me VLOG - Episode Eleven: Big in Japan!Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jan 28, 2020Survey of Ehlers‒Danlos Patients’ Ophthalmic Surgery ExperiencesEhlers‒Danlos Syndrome (EDS) is a rare disease affecting approximately 1 in 5,000 people. Although ophthalmic conditions associated with...
Jan 27, 2020What's Next For The Ehlers-Danlos Society?Lara recently interviewed with Saltstick Vitassium discussing her experience living with EDS, as well as what she and The Ehlers-Danlos...