What does it take to live with Ehlers-Danlos Syndrome and still lead a global movement for change? 🌍 In this episode, Lara Bloom shares her inspiring journey from navigating her own diagnosis to becoming one of the most influential advocates for rare, chronic, and invisible conditions worldwide. Lara opens up about balancing health, motherhood, and international advocacy while pushing for research, awareness, and medical collaboration. She also shares practical advice on m
Watch this instagram live recording of Lara speaking to Carey about disability representation, authentic stories, and Carey's new film, 'Where did the adults go?' (directed by Courtney Marsh) Watch here
Join Lara & Zac for an hour long discussion where they covered: The current diagnostic criteria for EDS and where they fall short The challenges of living with EDS, from daily symptoms to systemic barriers What's ahead with efforts to refine and improve diagnostic criteria Watch here
