News & Media

Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study

Improving care coordination is particularly important for individuals with rare conditions (who may experience multiple inputs into their...

Lived experience is the why and the how that health systems need

Lara shares in this article these & other forward-looking reflections on the future of patient advocacy, professionalisation, and the...

AccessiBe's Spotlight Session with Lara Bloom

Lara is interviewed by Josh Basile as part of accessiBe's spotlight sessions - this is a series dedicated to conversations with...

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom