News & Media

What's Next For The Ehlers-Danlos Society?

Lara recently interviewed with Saltstick Vitassium discussing her experience living with EDS, as well as what she and The Ehlers-Danlos...

Jan 27, 2020

Episode 09: Interview with Lara Bloom, International Director of the Ehlers-Danlos Society Dr. Bluestein chats with Lara Bloom about her...

Jul 18, 2019

Episode 027: Lara Bloom, International Executive Director of the Ehlers - Danlos Society Lara Bloom is the international Executive...

Jun 19, 2019

Marking Rare Disease Day in Brussels with pharma.be

Feb 28, 2019

Lara was recently invited to take part in an interview with Maxine Mawhinney. Unfortunately this video is no longer available to view.

Sep 13, 2018

Trendable Woman of the Month. Meet Lara Bloom: Lara Bloom is the international Executive Director of the Ehlers-Danlos Society where...

May 1, 2018

I am very proud to be a EUPATI Fellow. Please watch to see what EUPATI have been up to, the toolkit and the course itself.

Jan 31, 2018

Lara Bloom and Jodieanne Winter were interviewed live on Sky News during EDS awareness month to share the tragic story of Jodiesanne's 13...

May 2, 2017

"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom