Made Visible Podcast

Episode 72: Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness

Harper Spero chats with Lara Bloom about why she has dedicated her life to EDS and HSD awareness, why it's important to her The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.


Length: 37 mins


President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom