Sky News Interview May 2017

Lara Bloom and Jodieanne Winter were interviewed live on Sky News during EDS awareness month to share the tragic story of Jodiesanne's 13 year old daughter Lilly-Anna who committed suicide following no diagnosis or adequate management of her Ehlers-Danlos syndrome.


President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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© 2019 Lara Bloom