LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom

Event - Issues With My Tissues Documentary: Special Screening Tour 2019-2020

Join Lara on a special screening tour of “Issues With My Tissues” at various locations across Europe and USA. All events are free and open to the public.


“Issues with my Tissues” follows Lara’s journey as she trains to become the first known person with EDS to walk the London Marathon in 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life. This moving, informative documentary features interviews with medical professionals, families with EDS, and individuals who have suffered from misdiagnosis.


Lara will answer questions about how she manages her day to day symptoms, how things have changed since the documentary, and the work of The Ehlers-Danlos Society.  Lara will give her personal tips and tricks on how to have as many good days as you can whilst living with EDS, HSD, and a myriad of related symptoms and associated conditions.


For more information, full list of locations and to register click here.