top of page
VLOG
News & Media
Search
EDS & Me VLOG - Episode Twenty Four: Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Oct 5, 2021
EDS & Me VLOG - Episode Twenty Three: Spring
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 11, 2021
EDS & Me VLOG - Episode Twenty Two: New Year, New Beginnings Part One
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jul 8, 2021
EDS & Me VLOG - Episode Twenty One: Lockdown, Loss and Love
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 6, 2021
EDS & Me VLOG - Episode Twenty: We bought a house!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Sep 8, 2020
EDS & Me VLOG - Episode Nineteen: Doctors, Vets, and everything inbetween!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 12, 2020
EDS & Me VLOG - Episode Eighteen: I became a Professor!!!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jul 15, 2020
EDS & Me VLOG - Episode Seventeen: Everyday Life
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jun 9, 2020
EDS & Me VLOG - Episode Sixteen: Living in Lockdown
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
May 12, 2020
EDS & Me VLOG - Episode Fifteen: Turning 40 & Living Through COVID-19
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Apr 14, 2020
EDS & Me VLOG - Episode Fourteen: Team Zebra in London!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 10, 2020
EDS & Me VLOG - Special Episode: Cambodia & Vietnam Cycle Challenge
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 6, 2020
EDS & Me VLOG - Episode Thirteen: A New Decade...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
EDS & Me VLOG - Episode Twelve: The Jewish Elf's Christmas
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
EDS & Me VLOG - Episode Eleven: Big in Japan!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
EDS & Me VLOG - Episode Ten: Falling Leaves, Keto and Halloween Fun
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Nov 11, 2019
EDS & Me VLOG - Episode Nine: East Coast - West Coast
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Oct 8, 2019
EDS & Me VLOG - Episode Eight: Dazzling in Nashville
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Sep 4, 2019
EDS & Me VLOG - Episode Seven: It's Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Aug 8, 2019
EDS & Me VLOG - Episode Six: On The Road...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Jul 11, 2019
"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom
bottom of page