EDS & Me VLOG - Episode Fifteen: Turning 40 & Living Through COVID-19

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and CEO of The Ehlers-Danlos Society and documenting my journey living with Ehlers-Danlos syndrome.



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LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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  • Instagram
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Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom