News & Media

Rare Disease Month - The Lisa Burke Show

In the lead-up to Rare Disease Day on 29th February, Lara talks about the mental health impact on the whole family and care-giving unit....

Feb 21, 2024

Handi-Link Radio Interview

This program focuses on disability issues. Host Cam Wells explores all sides of this comparing and contrasting with able bodied life....

Jun 23, 2023

Two Disabled Dudes Podcast - You Got This

You Got This, Mental Health featuring Lara Bloom – There are many challenges living with a disability. On top of the physical...

Apr 14, 2023

3 Women with EDS who are shaping the future

Lara speaks with Reader's Digest's Amy Fogarty alongside Jeannie Di Bon and Courtney Gensemer about their lives with EDS and how they are...

Feb 24, 2023

Chromodiversity Podcast: Dazzling Zebras

Lara joins Chromodiversity's Elliot Polack to discuss how improved classifications and better awareness of EDS and HSD is resulting in...

Feb 14, 2023

VR Workforce Studio Podcast

The Resolve To Work In The Face Of Chronic Illness: Honoring Rare Disease Awareness Day Lara joins hosts Rick Sizemore and Betsy...

Feb 2, 2023

CNN Health

Lara speaks to CNN's Sarah Lazarus, whose daughter was diagnosed with hEDS in an effort to raise awareness about EDS, discussing how many...

Jan 4, 2023

The Fem Word - EDS: It's Time To Make The Invisible Visible

Lara speaks with Emily Montague, Managing Editor of The Fem Word, about the way EDS patients and others with chronic illnesses are...

Jun 9, 2022

The Health Design Podcast

The Health Design Podcast brought to you by the Journal of Health Design speaks to Lara Bloom about her experience living with an...

Feb 9, 2022

Pain-Free Fitness: The Podcast

Your Pain is NOT Invisible with Professor Lara Bloom Lara speaks with Mariah Heller to discuss Ehlers Danlos, Chronic Pain, and...

Oct 8, 2021

Rare Diseases International: Meet the Patient Advocates

Lara takes part in RDI's series of conversations with representatives of the global rare disease patient movement. Watch. Length: 8mins...

Sep 3, 2021

I Felt Like An Outcast Most Of My Life—Then My Diagnosis Gave Me A Community

Lara shares her personal experiences living with an invisible illness with MindBodyGreen. Go to article.

Jun 21, 2021

The Spoonie Struggle Podcast

Episode 15: Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes. Lara speaks with Jessica...

Jun 4, 2021

The Chronically Courageous with Bonni Howard - From Challenge Comes Opportunity

Episode 23: Lara talks with Bonni Howard about her personal experience with COVID-19, recent challenges separating her personal &...

Oct 26, 2020

How a Patient-Led Effort Can Change a Research Landscape

Lara recently spoke with RareX, a non-profit created by leaders in the fields of patient advocacy, medical research, biopharma, and...

Sep 2, 2020

Prof. Lara Bloom Virtual Professorship Ceremony 2020

Watch as Lara Bloom is presented with her Professorship and becomes an Academic Affiliate Professor of Practice in Patient Engagement and...

Jul 15, 2020

Tea with HB Podcast: Rari-tea

Season 1, Ep. 11 No two zebras have the same stripes. How does this relate to rarity? Listen to HB's interview with Lara Bloom to find...

May 30, 2020

Going Global - Global Genes Webinar

It was an absolute pleasure to share my insights on a non profit 'Going Global' through my experience at The Ehlers-Danlos Society with...

May 1, 2020

Two Disabled Dudes Podcast

Episode 97: A Life of Ehlers-Danlos Advocacy with Lara Bloom. Sean and Kyle (Two Disabled Dudes) chat with Lara Bloom about what it means...

Feb 18, 2020

Made Visible Podcast

Episode 72: Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Harper Spero chats with Lara...