How a Patient-Led Effort Can Change a Research Landscape

Lara recently spoke with RareX, a non-profit created by leaders in the fields of patient advocacy, medical research, biopharma, and technology, about how a patient-led effort can change a research landscape.

Go to article.


President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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© 2019 Lara Bloom