Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide
Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration
(Penn State College of Medicine)
Representing the Patient Voice &
Fostering Global Collaboration.
Empowering Patient Engagement
in Research & Development &
Promoting Patient Centred Outcomes.
EDS & ME Vlog - Latest Episode
"Nothing About Us Without Us"
With collaboration comes a real opportunity to make change happen.