LARA BLOOM

Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide

Rare, Chronic & Invisible Conditions - specialising in Ehlers-Danlos Syndromes &

Associated Symptoms & Conditions.

Representing the Patient Voice &

Fostering Global Collaboration.

Empowering Patient Engagement

in Research & Development &

Promoting Patient Centred Outcomes.

Highlights

I am Number 17 Campaign

A Tokeda led campaign highlighting how
1 in 17 people in the UK is impacted by rare diseases.
Lara was paired with photographer Ross Fergusson to help illustrate her personal story with rare disease.
 

EDS & ME Vlog - Latest Episode

"Nothing About Us Without Us"

With collaboration comes a real opportunity to make change happen.

LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

  • Facebook
  • Twitter
  • YouTube
  • Instagram
Subscribe to Vlog

Subscribe to my YouTube Channel for monthly Vlog updates.

 

Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom