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Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide

Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration

(Penn State College of Medicine)

Professor of Practice
Public Speaker

Representing the Patient Voice &

Fostering Global Collaboration.

Patient Advocate

Empowering Patient Engagement

in Research & Development &

Promoting Patient Centred Outcomes.


Check back soon
Once posts are published, you’ll see them here.

I am Number 17 Campaign

A Tokeda led campaign highlighting how
1 in 17 people in the UK is impacted by rare diseases.
Lara was paired with photographer Ross Fergusson to help illustrate her personal story with rare disease.
Donate Cycle Challenge

EDS & ME Vlog - Latest Episode

"Nothing About Us Without Us"

With collaboration comes a real opportunity to make change happen.

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