Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide
Rare, Chronic & Invisible Conditions - specialising in Ehlers-Danlos Syndromes &
Associated Symptoms & Conditions.
Representing the Patient Voice &
Fostering Global Collaboration.
Empowering Patient Engagement
in Research & Development &
Promoting Patient Centred Outcomes.
I am Number 17 Campaign
A Tokeda led campaign highlighting how
1 in 17 people in the UK is impacted by rare diseases.
Lara was paired with photographer Ross Fergusson to help illustrate her personal story with rare disease.
EDS & ME Vlog - Latest Episode
"Nothing About Us Without Us"
With collaboration comes a real opportunity to make change happen.