LARA BLOOM
Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide
Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration
(Penn State College of Medicine)
Public Speaker
Representing the Patient Voice &
Fostering Global Collaboration.
Patient Advocate
Empowering Patient Engagement
in Research & Development &
Promoting Patient Centred Outcomes.
Professor of Practice
Highlights
I am Number 17 Campaign
A Tokeda led campaign highlighting how
1 in 17 people in the UK is impacted by rare diseases.
Lara was paired with photographer Ross Fergusson to help illustrate her personal story with rare disease.
EDS & ME Vlog - Latest Episode
"Nothing About Us Without Us"
With collaboration comes a real opportunity to make change happen.