Raising Awareness of Rare, Chronic & Invisible Diseases Worldwide
Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration
(Penn State College of Medicine)
Representing the Patient Voice &
Fostering Global Collaboration.
Empowering Patient Engagement
in Research & Development &
Promoting Patient Centred Outcomes.
I am Number 17 Campaign
A Tokeda led campaign highlighting how
1 in 17 people in the UK is impacted by rare diseases.
Lara was paired with photographer Ross Fergusson to help illustrate her personal story with rare disease.
"Nothing About Us Without Us"
With collaboration comes a real opportunity to make change happen.