'Issues With My Tissues' Documentary

In 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life due to Ehlers-Danlos syndrome, Lara Bloom decided to try and become the first person with EDS to walk the London Marathon. The documentary follows Lara’s journey and features interviews with medical professionals, families with EDS and individuals who have suffered from misdiagnosis. ​


The Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how affect the body and in their genetic causes. They are generally characterised by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility. Although widely unknown, EDS affects many families and individuals around the world.


A moving, informative documentary explaining the issues and struggles of those with all types of the Ehlers-Danlos syndromes and related disorders.


NOTE - This documentary was made before the 2017 Criteria was published and therefore not all the EDS information in there is up to date.

LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

  • Facebook
  • Twitter
  • YouTube
  • Instagram
Subscribe to Vlog

Subscribe to my YouTube Channel for monthly Vlog updates.

 

Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom