LARA BLOOM

President & CEO:

The Ehlers-Danlos Society

Patient Engagement & Advocacy Expert

for Rare, Chronic & Invisible Conditions

Public Speaker & Campaigner

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Follow my journey advocating and representing the patient voice in rare and invisible diseases worldwide, as well as gaining an insight into my personal experience as a patient.

© 2019 Lara Bloom

Cambodia to Vietnam Cycle Challenge

Lara cycled from Cambodia to Vietnam in February 2020.


Despite suffering with various problems with her EDS, Lara was given medical clearance to go ahead with the project. She reached the finishing line for all of the EDS and HSD community.


This challenge was in aid of raising awareness and funds for The Ehlers-Danlos Society.

A film following the groups journey will be coming out later in 2020. For more details subscribe to Lara's social media channels.