May 10, 2019EDS & Me VLOG - Episode Four: Rest, and breatheJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Apr 10, 2019EDS & Me VLOG - Episode Three: Make a WishJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 14, 2019MetaECHO Talk 2019: EDS ECHO - Together We Will DazzleLara Bloom gives talk on EDS ECHO - the first ECHO for a Rare Disease. MetaECHO 2019 brought together health policy experts, government...