Sun, 22 Mar
|Mercure Paris Orly Rungis Aéroport Hotel
Issues With My Tissues Screening + Q&A: Paris
Join Lara Bloom, President and CEO of The Ehlers-Danlos Society, on a special screening tour of “Issues With My Tissues”. This is a free event.
Time & Location
22 Mar 2020, 19:00 CET
Mercure Paris Orly Rungis Aéroport Hotel, 20 Avenue Charles Lindbergh 94656 RUNGIS FRANCE
About the event
“Issues with My Tissues” follows Lara’s journey as she trains to become the first known person with EDS to walk the London Marathon in 2011 at the age of 31, despite having barely walked more than three miles at a time before in her life. This moving, informative documentary features interviews with medical professionals, families with EDS, and individuals who have suffered from misdiagnosis.
Lara will answer questions about how she manages her day to day symptoms, how things have changed since the documentary, and the work of The Ehlers-Danlos Society. Lara will give her personal tips and tricks on how to have as many good days as you can whilst living with EDS, HSD, and a myriad of related symptoms and associated conditions.
Please arrive 15 minutes before the start. The event is expected to last 90 minutes in total including the Q&A session. All venues are wheelchair accessible. Please note, no food or beverages will be provided. Children are welcome and remain the responsibility of their parent or guardian at all times.
For all enquiries related to these events please email events@ehlers-danlos.com