Dec 12, 2023#RareShowcase23 Lightning Talk Lara Bloom - How project ECHO can help rare diseasesAt the London Rare Disease Showcase, Lara shared the work of The Ehlers-Danlos Society using project ECHO to help rare disease, with a...
Nov 23, 2023EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in BetweenJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Sep 20, 2023EDS & Me VLOG Episode Thirty Eight: SummerJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...