Sep 8, 2020EDS & Me VLOG - Episode Twenty: We bought a house!Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Sep 2, 2020How a Patient-Led Effort Can Change a Research LandscapeLara recently spoke with RareX, a non-profit created by leaders in the fields of patient advocacy, medical research, biopharma, and...
Aug 12, 2020EDS & Me VLOG - Episode Nineteen: Doctors, Vets, and everything inbetween!Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...