Jun 4, 2021The Spoonie Struggle PodcastEpisode 15: Lara Bloom's, of the Ehlers Danlos Society, Story With Ehlers Danlos and Associated Syndromes. Lara speaks with Jessica...
Feb 16, 2021How Are Patients With Rare Diseases & Their Carers In The UK Impacted By The Way Care Is CoordinatedCare coordination is considered important for patients with rare conditions, yet research addressing the impact of care coordination is...
Jan 6, 2021EDS & Me VLOG - Episode Twenty One: Lockdown, Loss and Love Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...