Oct 5, 2021EDS & Me VLOG - Episode Twenty Four: SummerJoin me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Sep 3, 2021Rare Diseases International: Meet the Patient AdvocatesLara takes part in RDI's series of conversations with representatives of the global rare disease patient movement. Watch. Length: 8mins...
Aug 11, 2021EDS & Me VLOG - Episode Twenty Three: SpringJoin me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...