Mar 25EDS & Me VLOG Episode Forty One: Lots of fun in quarter one!Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 21Rare Disease Month - The Lisa Burke ShowIn the lead-up to Rare Disease Day on 29th February, Lara talks about the mental health impact on the whole family and care-giving unit....
Jan 18EDS & Me VLOG Episode Forty: Wrapping up the yearJoin me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...